zebra month

HAPPY ZEBRA MONTH EDSERS!! :) Its EDS awareness month, which (as my mother has pointed out several times in the past six days) is also my birth month. Go figure. Anyway, I'm still on crutches from my knee-episode, which is being drawn out longer than it should be because I hate walking on crutches and I hate lugging them around everywhere, and we also don't have a knee brace because I left it at my fathers house from the last time that I dislocated my knee-cap badly. So basically I'm doing everything that I shouldn't be doing to help it heal, like sitting here criss-cross-applesauce style (kindergarten flashback much??) writing this post. Which makes my knee hurt. I should probably stop that. 


Anyway, this whole thing has stressed me out quite a bit about prom, which is this coming Saturday, and whether I will be able to dance by then or not is still to be determined. Apparently my joints are more unstable than I thought because I keep waking up with my leg in all kinds of not-so-normal positions because of the floaty knee problem... Oh well. I'm just going to have to get used to all of this. 


The one plus about the whole prom thing is that I figured out what I'm going to do for my jewelry last night. My Grandpa, (mom's dad), sent me a card with a check that will cover my dress, and not only that, but he included two pictures, one of him at his 1955 prom, and one of my grandma at her 1960 prom, laminated. I thought the whole thing was really sweet because not only did I not expect any help with the cost of things, I found it very thoughtful of him to send me pictures and a card. It was really sweet. So last night, I was sitting going through some things because I needed to find the right album to put the pictures in, and I realized something I hadn't thought of. Normally, I make the jewelry that I wear to dances to match my dresses, but this year my dress is olive green with gold detail, and I don't wear gold jewelry, nor do I feel like buying gold wire. The only gold jewelry I have is the jewelry that my Grandma gave me out of her jewelry box when I was very small. I decided that I'm going to wear a ring that she gave me, with a necklace she gave me, and I'm going to extend a baby bracelet that she gave me as well. I want to give a little shout out to my Gaumi (Thats what my sister and I called her) for my prom this year since she won't be there that day to see me. I think she'd like that. 


How does this touching little story come full circle? Well, my Grandma was the one who gave EDS to my mom, who gave it to me. So at my prom, in EDS awareness month, I will be wearing the jewelry that my grandma gave me along with the genes she passed to me too. :)

Magic huh? The floating earrings?? :)

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stormy weather and memories

There is a huge storm headed my way - I remember a time when I would be outside right now, sitting and waiting for the rain. Of course, the predicted half dollar sized hail wouldn't be the best thing to go run around in, so maybe that wasn't the best thing to have come to mind... I do love storms though. Thunder helps me sleep. I don't know why, but it does. That and the raindrops on my windows. 

ANYWAY, I was messing around on my computer, and I just found this picture that I played with in photo-shop a while back. Its of me and Andrew for prom a last year - before any of this Ehlers-Danlos Syndrome nonsense. Everything was fine and we were happy teenagers. Honestly everything was great and we had no worries... except for his Type 1 Diabetes and heart problems that we keep under control. Other than that, we were pretty normal. And now both of us are just medical money pits... Looking at this picture brought a lot back though. Prom seems to be the poster child of high school - almost everyone goes. Everyone has their prom story. The reason they went, the reason they didn't, what they did at dinner, some embarrassing memory. Everybody. Me? My memory is being able to walk in un-sensible shoes and not having to worry about whether or not my pain meds worked or not. Thats what I remember. I remember NOT worrying about the chair I sat in at the restaurant we went to, and NOT thinking about the stairs I had to walk to go to the bathroom. I remember falling once, because my ankle rolled like it did all of the time. No cause for concern. And I remember being happy, and healthy. Or at least I thought I was healthy... I wasn't, it was just that nobody could see it yet. It was hiding, because thats what EDS does. It hides and then pops out and says "APRIL FOOLS - YOU'RE NOT WHAT YOU THINK YOU ARE!!!" Thats what it does. 


But I'm not bitter. Not at all. :) I'm okay with what I've got. I just have to rant about it sometimes. :)


And this face... Well lets just say I have a habit of getting caught making some not-so-flattering faces when people have cameras pointed at me... Its a curse. 

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