"I can do all things through Christ who gives me strength."
Philippians 4:13
*For the sake of anonymity for those who I'm going to talk about here, I'm not going to name any names, and I'm not going to give any relationships that aren't necessary to the main point of the story, because that could potentially be hurtful and being hurtful isn't the point.*
A few days ago on a family trip I was talking to someone with whom I am not terribly well acquainted. This person did though, know about my disability, because everyone does. I have NO problem talking about it in an informative and open way, because it's a big part of me and I understand that. Anyway - we were sitting and talking, and this person asked me what I plan on doing after I graduate. There are many things that I could have said. I could have told them that I was going to go to grad school and get my masters, or my doctorate, or go directly into research before pursuing a graduate degree. I could have told them about how I intend to go into teaching, because I have been most profoundly influenced by my professors and I want to be able to influence young people in that same way. Buuuuuuuut that's not what I said. I said the one thing that I DO know for CERTAIN - when I graduate, I want to be a mom. I want to have kids. I have wanted that since I was about 7 years of age, back when I couldn't tell people those things because they would have thought that I was crazy. 7 year olds want to be astronauts and super models, not moms. So I told this person that I wanted to be a mom, because that has been my dream.
Normally when I tell people this they awkwardly embrace my surprising response.
Not this person.
This person said, "Are you sure that's a good idea?"
And I said, "Excuse me?"
And with quite the attitude they said, "Your disease - it's hereditary, isn't it?"
I was shocked. I responded with, "Well there is a 50/50 chance that it will be passed on." And that was the end of that. (BOY do I feel better putting this in writing...)
It also happened to be pretty much the last time that I voluntarily spoke with this person, because anyone who could be that presumptuous was not someone I wanted to speak with freely.
When I was a child, my mom told me that if I couldn't say something nice, I shouldn't say anything at all. I'm sure a lot of people have been told that at one point in time by a parent or guardian or just an adult. If I was speaking with someone I had barely just met, I would never dare to make the judgements that were made that day, and I would certainly have never stated them the way that the person I was talking to did. They were blunt beyond belief - but one can be blunt without being rude. There is a difference.
What I really learned from this experience is that the easiest way to bother me is to remind me that I'm disabled. It's not like I forget. Honestly. I'm constantly reminded that I'm different, without people telling me. So the easiest way to get to me, and really fire me up, is to act as if you know what is going on in my life. To act like you know what is best for me. I'm the one in this body, with the limitations that I have been given, and therefore I am the one with the job of sharing what those limitations are. If I don't tell you, you don't know.
It's the same way with the issue of walking. My mom and I now have this unmentioned understanding (Well... I guess it's mentioned now...) that she doesn't ask me how I'm feeling. She will ask me if I want to do a particular activity, and depending upon my response, she knows how I'm doing. If she asks if I want to go hiking, she lets me pick the trail. I pick whether we walk one mile, or two, or five. She doesn't just PICK the shortest trail because I sometimes don't walk so well. That's the magic of my mom - she lets me make my own limits, and she lets me make those choices and own my disability, as opposed to making it own me instead.
The moral of this story is this - do not limit other individuals because you think you are doing what is best for them. You have the best intentions, I know. But everyone has insecurities, and it's a shame when those insecurities are used to hold people back against their will. This is especially true (in my opinion) when it comes to people who are similar to myself. So next time, before you try to be sensitive to someone's situation, consider whether you are helping or hurting with that attention that you are paying them. Are you limiting their choices, or are you empowering them to show you what they need - to learn things about themselves that they didn't know? To take ownership of their situation?
I know that when I am a mother, because someday I will be, if my children inherit my condition there will be a point probably shortly before they are the age that I am now, when I will have to let them learn for themselves what they can and cannot handle. When they learn that, and learn to effectively communicate it to others, I will know that I have been successful.
Me, Justin, and my sister Megan starting the Hope Furnace trail at Lake Hope State Park. It's a 3.8 Mile trail, and I walked it with them and my mother that day. Just sayin'.
